Hyper-vigilance vs. Complacency in Hypermobility

Since the age of 12, due to the regularity at which I needed physio or specialists appointments, my family and I have referred to me as “a frequent flyer”. You know, a frequent flyer miles program member. We would joke…

Mobile Device Ergonomics for Hypermobility

We use mobile devices such as phones and tablets more than we ever have. We are the mobile generation. And while is super convenient, it’s not that great for our bodies. When was the last time you saw someone reading…

Workspace Ergonomics for Hypermobility: Part 2

The previous post in this series Workspace Ergonomics for Hypermobility: Part 1 talked about the posture we should be assuming when we’re sitting at a desk, in particular when we use a computer. This week we want to focus on some specific…

Workspace Ergonomics for Hypermobility: Part 1

We spend WAY too many hours of our lives sitting, whether that it is in cars, on the couch, or behind a computer screen. Unfortunately with the invention of laptop computers mobile devices, even if we’re not sitting at our…

Living life with the parking brake on

I often feel like I am living life with the parking brake on. If you drive a car and have ever started accelerating with the parking brake on, you will know the feeling! That dragging, almost backwards pull… That’s what…

10 reasons why I don’t do public transport with hypermobility

“Use public transport,” they say, “it’s better for the environment“. Do you know what it’s not better for? Me! I caught a bus into & therefore home from the city last week, and that is definitely my quota for the…

Is Your Health Team Failing You? What To Watch For

Something that comes up regularly in chronic illness circles is the treatment received from health experts – those who are supposed to be on your health team. More often than not, people feel mismanaged, ignored, uncomfortable. The thing is, it’s…

Eleven Lessons from my Chronic Illness

“Well, of course we’re diagnosing you with it” were the exact words that fell out of my geneticist’s mouth that summer day. I nodded once, heartbroken but accepting. I turned to my mom then as I felt her put a…

Are party tricks OK?

No. Party tricks are not OK. Few things get me extremely fired up and angry. But this is one of them… I have had some encounters with people online this week which have made me furious – what did they…

To the woman who chose not to judge me: Thank you

To the woman who served me in the RMS and chose not to judge me, Thank you. Thank you for treating me like a person. Thank you for not questioning the fact that I am in my 30’s and renewing my…

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