I’m Jo, an adult living with a severe connective tissue dysplasia. My condition means I permanently rely on a wheelchair to move about.

I’m a qualified Social Worker and work for Fighting Chance running LifeX, a social and mentorship initiative.

I’m passionate about writing, blogging and motivational speaking and I am a ‘Don’t DIS my ABILITY Ambassador’

You can read more of my writing on my blog

Jo Berry Resident Blogger May 8, 2016

 

My Name is Sam Payne. I’m 18 and live in Newcastle NSW.
I’ve been diagnosed for a few years now but like usual I had misdiagnosed issues all my life and had my first surgery at 8 months old.
I’m an avid American football fan and enjoy all kinds of sport. I play football (yes, I’m a little loopy) and I’m studying a double diploma at the moment! I have a soft spot for dogs and dry puns.
My aim in this life is to encourage, support and make as many people feel loved as possible!

Sam Payne Resident Blogger May 8, 2016

 

I am 18 years old and currently studying a Bachelor of Science and Secondary Education at the University of Sydney, as I hope to become a high school Biology and Mathematics teacher. I also teach beginners piano lessons on weekend.

I was diagnosed with JHS in 2013 during high school, but have experienced symptoms since about Year 5.

As a person of faith, I am inspired and encouraged by the message of hope that Jesus delivers.

Miriam Rose Resident Blogger May 8, 2016

 

It’s a pleasure to be here and meet all of you!  My name is Michele.  I am 45 years old and have Ehlers-Danlos Syndrome, Hypermobility Type.

I was finally diagnosed in 2009 after 23 years of searching for an answer to my ever increasing painful and life altering myriad of symptoms.

As a resident blogger, I look forward to sharing some of my own knowledge and experiences.  I am also excited to connect with, and learn from, all of you.

Together we will increase awareness, lighten each other’s load, and make a difference!

Michele Pavlis RESIDENT BLOGGER May 19, 2016

 

My name is Jennifer Manly. I’m 28 years old and was diagnosed with EDS in 2015.

I do freelance marketing and writing and I have a precious dog named Seven. I love reading, writing, podcasts, movies and fashion and I adore working out and Pilates/Yoga, when my body permits. I’m an independent spirit who has learned that friends and family are the most important thing. I’m obsessed with bettering myself, learning how to deal with life struggles and practicing self-love.

Having learned so much, my goal is to now help others, which is why I’m currently working on launching my blog, Serene Seven (coming soon). I admire those who smile through the tears, appreciate the smallest of things and who keep trying, even when it seems impossible.

“Owning our story and loving ourselves through that process is the bravest thing we’ll ever do.” ― Brené Brown

Jennifer Manly RESIDENT BLOGGER May 19, 2016

 

Hello everyone! My name is Courtney Pavlis.

I am so looking forward to sharing my experiences with you all and learning more about yours. This is going to be a great space filled with support and love for all of us.

I’m 21 years old and have just finished up my junior year of college. I am currently attending Fitchburg State University in Fitchburg, Massachusetts with a major in Professional Writing as well as a minor in Psychology. I was diagnosed with Ehlers-Danlos Hypermobility Type when I was 18 years old.

I’m a self-proclaimed lover of dogs, music (especially One Direction and Scarlet Fade), and I spend most of my time watching Supernatural and reading anything I can get my hands on.

My mom is my best friend and my biggest inspiration in life. She’s my anchor, she’s my biggest supporter, and she’s the calm to my chaos. She’s also a blogger on here as well so look forward to reading her words of wisdom!

Come along on this journey with me as we all figure it out together!

Find me elsewhere!      Facebook        The Odyssey Online

Courtney Pavlis RESIDENT BLOGGER May 23, 2016

 

Sam is a nutritionist, freelance health writer, wellness speaker and foodie. Her health journey began with cancer, and she now lives with EDS. She dislikes writing bios in the third person, but her job requires it. Her new site, Everyday Thriver, aims to empower people with chronic conditions to live inspiring lives.

You can find her other website here

And Connect with her on Facebook

Samantha Gemmell RESIDENT BLOGGER May 2, 2017

Some could say that my world is surround by hypermobility conditions, and at 34, I totally agree.

Firstly, I am a mother of two gorgeous daughters who have both joint hypermobility syndrome. I too have since been diagnosed with joint hypermobility syndrome which explained so many years of puzzling the doctors.

I also run my own paediatric occupational therapist service, Mobile Kids O.T., specialising in pre-school and school age children with handwriting/learning difficulties, many of whom are very hypermobile.

When I am not balancing the roles of wife, motherhood, work and running my own business, I love being creative – dressmaking, crochet, needlework. I am so excited to be able to share with you from the perspective of parent, adult and therapist living/working with hypermobility.

My business website is Mobile Kids OT

Rebecca Spokes RESIDENT BLOGGER & mobilekidsot.com.au May 19, 2016

 

I’m Michelle, I’m 31 and I am a New Zealand born & raised, Aussie. I have joint hypermobility & orthostatic intolerance amongst other conditions such as Crohn’s & chronic fatigue.

Prior to becoming significantly unwell, I was a young, active woman on a ‘career & study’ path. My health changed that and I now currently operate a small business from home, with the help of my fiancé, who has been my pillar of support & inspiration.

I have learned a great deal through my illnesses and look forward to sharing some of those things with others. I feel like I am gradually working towards reclaiming control of my life and look forward to returning to social ballroom dancing with my fiancé and partner by the end of the year.

Michelle Youl RESIDENT BLOGGER May 21, 2016

 

My name is Jessica, I’m 17 and from Sydney.

I have hypermobile EDS amongst other things and enjoy dying my hair different colours of the rainbow, photography, graphic design, writing and reading, even if I have to do these things a little differently to those without hypermobility.

Jessica Bowie Resident Blogger May 8, 2016

 

Hi! I am Renee, at 30 years young I am extroverted, inquisitive, adventurous and passionate by nature. I was diagnosed at 8 into the connective tissue dysplasia family and have had plenty of ups and downs along the way. Graduating with a degree in medical radiation science, I am a Radiation Therapist by day, a fun loving cake creator by night, and for 12 years have volunteered in various roles with ConnecTeD Foundation.

I fell in love, and we have two sensationally, life-changing daughters together; we are a family affected by Loeys-Dietz Syndrome. My eldest daughter and I have Loeys-Dietz, and I have 2 unique journeys: one as a patient, and one as a mother. Individually and as a family, we navigate our way through the roller coaster and adventure of life.

I look forward to sharing parts of my journey with you, and hopefully learn from yours too!

Renee Veliscek-Plisek RESIDENT BLOGGER and Hypermobility Connect Admin May 21, 2016

 

I’m 32 and have severe hypermobility which has led to a multitude of surgeries in the last 20 years.

I previously worked in health care but now due to my hypermobility choose to work as a Web Designer for other helping professionals.

I enjoy doing anything creative (drawing, photography, graphic design, candle making) and feel blessed to live on the Northern Beaches of Sydney.

Michelle Louise Heart-Starter of Hypermobility Connect May 2, 2016

 

I’m Mya, I’m 17 and from the Gold Coast, Australia.

I’m living with Ehlers-Danlos Syndrome Hypermobility Type and rely fully on the use of a wheelchair. I’ve been struggling with my Ehlers-Danlos for my whole life but was only diagnosed in 2014 after several years of misdiagnoses. I am TPN & Gastric Jejunum fed due to multiple different conditions, with the root cause being my EDS. I had to leave school due to my health, so I’m currently studying Community Services online and hope to one day become a psychologist.

I’m an avid Harry Potter fan, with J.K Rowlings being my queen! I look forward to sharing my thoughts and views on being a teenager living with this crazy roller-coaster of an illness!

Mya Hurst Resident Blogger September 22, 2016

 

Hello, everyone, my name is Erica, first and most important, to me, I am a Nurse, and I love what I do! Secondly, I have Hypermobile Ehlers-Danlos Syndrome and GI Motility Disorder.

Coming to terms with a chronic illness is tough and life-altering for anyone. Writing helps me process and work through it all, and I hope I can spread the feeling to those reading my blogs that you are not alone in your journey!

Erica Ortiz RESIDENT BLOGGER March 13, 2017

Want to be featured on Hypermobility Connect?

Do you blog about hypermobility? Do you want to submit a blog to be featured on Hypermobility Connect?

We would love to hear from you!

To submit a blog post:

  • Make sure it fits within Hypermobility Connect’s Blogging Guidelines
  • Please aim to keep your blog post under 600 words.
  • Include a brief bio (1-4 sentences) and a profile photo
  • Send all blogs to michelle@hypermobilityconnect.com with the email subject: Blog Submission
  • We accept previously published blog posts, so you can just send us the link if you like! 
  • If you have any questions, feel free to make contact via email or social media.

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