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The Four Pillars
- To increase awareness & recognition of hypermobility conditions across both the medical and general communities. Earlier recognition leads to better management and improved quality of life for people living with these conditions.
- For some conditions (Marfan Syndrome, Loeys-Dietz Syndrome and Vascular EDS) early recognition can mean the difference between LIFE & DEATH.
- To educate medical and allied health professionals about hypermobility and it's related conditions
- To educate people living with hypermobility-related conditions about their condition and options for treatments and management
- To educate the wider community about the real-life impacts of hypermobility on the person living with hypermobility, and their family.
- To encourage acceptance of symptoms, variation in presentation and the significant day to day impacts of hypermobility conditions, by medical and health professionals.
- To help people living with hypermobility-related conditions accept their reality and learn to live a happy, hopeful and healthy life with their condition
- To help the wider community accept the reality of hypermobility, it's ability to devastate an individuals quality of life, including the ability to work full-time, if able to work at all.
- To connect people living with hypermobility to each other, for mutual support and appropriate peer education.
- To connect people living with hypermobility to medical & health professionals who can assist them with diagnosis, treatment & management of their condition
- To connect medical & health professionals to each other, for networking and professional support opportunities.
WHY HYPERMOBILITY CONNECT?
Having practised as an occupational therapist with a special interest in working with people with hypermobility, I was given unique insight into the challenges faced by people of all ages, stages & locations in Australia. Whilst I cherished my time practising as an OT, there came a point where I had to step back and see the bigger picture.
As one person, I was only able to help a finite number of people on their journey with hypermobility and realised that this wasn’t enough for me – or for you. The idea of Hypermobility Connect has been brewing for years and has now been a couple of years in the making. It’s a true work of the heart because as a fellow bendy-body who wasn’t formally diagnosed until I was 23, I remember so vividly the journey that was… and I look forward with hope at the continuing journey ahead.
Welcome home to Hypermobility Connect.