Hypermobility Lecture Series
Switching on the Lightbulb to see Hypermobility Disorders This blog has been written to give both clinicians and people living with hypermobility and associated conditions, (EDS/HSD) the [...]
Find a Health Professional
Are you looking for a health professional in Australia who has an interest in working with people with hypermobility? You are welcome to email us and we will provide you with names if we are able.
Feel less alone!
Reading the blog posts of others who are living a life with hypermobility can be reassuring, comforting and can help reduce feelings of isolation.
We also have a Facebook Page and Insta account!
Learn More About Hypermobility Conditions
If you’re looking to learn more about Hypermobility Conditions, this is the best place to start on our website.
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My health professional is AMAZING and I want to share their details with you!
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I’m a Health professional & would love to write!
We are always looking for health professionals to voluntarily contribute a piece to our blog from their professional perspective. If this sounds like you, please apply now!
Our 4 Part Mission Statement
Recognise
- To increase awareness & recognition of hypermobility conditions across both the medical and general communities. Earlier recognition leads to better management and improved quality of life for people living with these conditions.
- For some conditions (Marfan Syndrome, Loeys-Dietz Syndrome and Vascular EDS) early recognition can mean the difference between LIFE & DEATH.
Educate
- To educate medical and allied health professionals about hypermobility and it’s related conditions
- To educate people living with hypermobility-related conditions about their condition and options for treatments and management
- To educate the wider community about the real-life impacts of hypermobility on the person living with hypermobility, and their family.
Accept
- To encourage acceptance of symptoms, variation in presentation and the significant day to day impacts of hypermobility conditions, by medical and health professionals.
- To help people living with hypermobility-related conditions accept their reality and learn to live a happy, hopeful and healthy life with their condition
- To help the wider community accept the reality of hypermobility, it’s ability to devastate an individuals quality of life, including the ability to work full-time, if able to work at all.
Connect
- To connect people living with hypermobility to each other, for mutual support and appropriate peer education.
- To connect people living with hypermobility to medical & health professionals who can assist them with diagnosis, treatment & management of their condition
- To connect medical & health professionals to each other, for networking and professional support opportunities.