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Let us be honest. I hated high school. It was one of the most miserable times of my life. I was in pain and at that stage a medical mystery, I had undiagnosed hypermobility (which turned out to [...]

Let’s talk about spoons. “Spoons? What does cutlery have to do with anything?” I hear you ask. Well, as it turns out, not much, except for spoons… I was always a very [...]

Jo Southall is an Occupational Therapy Student in the UK with her own complex health issues, including Ehlers-Danlos Syndrome Hypermobility. She is due to graduate from her occupational therapy [...]

After 9 long months of waiting, and as a patient with hypermobility, it was 9 months full of joy, excitement, love, but also risks, fears, what ifs, adjustments, and quick thinking (that could be [...]

One of the hardest things about having a chronic condition like a Hypermobility Spectrum Disorder is trying to find a balance between resting when your body tells you it needs to and living a [...]

Fatigue has the potential to be a real party pooper. For everyone, not just the person with hypermobility. As I’m sure you’re well aware, people with hypermobility – young kids and [...]

A few years ago I was introduced to the concept of pyjama days…. Literally, as you would imagine, a day where you don’t get out of your pyjamas. It’s an indoors day, a couch potato day… a rest [...]

Doctors, in my experience, tend not to approve of patients becoming friends: “They’ll make each other sicker”; “they’ll become obsessed with their illness”; “it’s unhealthy”. Personally, I [...]

I was struck the other day when I ran into an old family friend. When she realised that I could no longer walk at all, she was a little shocked and said “Oh I am so sorry” to which I replied, [...]

Pain and I have a very unique and intimate relationship. If you’re reading this blog it means you are probably in the same boat and you may even feel like our boat is a little bit leaky. [...]