hEDS life: An outsider looking in
When living with hypermobility, it sometimes feels like you are sitting on the sidelines watching life go on around you, unable to participate. An outsider looking in. Feeling more [...]
Patient Education: Terminology 101
It’s time for Terminology 101. Why? Because I’m seeing an ever increasing number of people who are trying to raise awareness or communicate about hypermobility conditions (which is [...]
Be Frustrated
Living with an invisible illness or let’s face it, any illness is frustrating. It’s frustrating, and it’s hard and inconvenient, and yet it’s something we must live with every single day. Now [...]
Learning to feel content
Sometimes I find myself looking at my friend’s lives and feeling utterly jealous. I look at my friends who are married, pregnant, have gorgeous kids, great careers, travel to exotic parts [...]
School is over… Celebrations for them, not for me
For millions of students across the country these words couldn’t come soon enough, and finally, after 13 long years, they can finally say goodbye to that chapter of their lives: High School [...]
From ‘sick kid’, to just being me
I was chatting with a friend the other day about a young person who had lived with a chronic illness since they were in primary school. This person was a typical “sick kid”. [...]