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  • Home
    • About
    • Blogging Team
    • Community Guidelines
  • About Hypermobility
    • The Spectrum of Hypermobility
    • Hypermobile Ehlers-Danlos Syndrome
    • HSD, JHS, hEDS… oh my!
    • Links
  • For Health Professionals
    • Join Our List
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All of our Blogs!

Monthly Archive for: "February, 2018"
February 2018
Dear Ehlers-Danlos Syndrome
By Liz Harvie
In Adapting, Adults, Chronic Illness, Community
Posted February 28, 2018

Dear Ehlers-Danlos Syndrome

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]

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The daily realities of Marfan Syndrome
By Lucy Atkinson
In Adults, Chronic Illness, Marfan Syndrome
Posted February 22, 2018

The daily realities of Marfan Syndrome

At the beginning of February, I made a vow to write at least one blog post a week in aid of Marfan Syndrome Awareness Month. That has proven to be a very challenging task, but I’m trying. [...]

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Finding my voice through Marfan Syndrome
By Lucy Atkinson
In Adults, Chronic Illness, Emotional Impacts
Posted February 15, 2018

Finding my voice through Marfan Syndrome

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]

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Learning you have Marfan Syndrome
By Lucy Atkinson
In Adults, Chronic Illness, Emotional Impacts, Medical Experiences
Posted February 8, 2018

Learning you have Marfan Syndrome

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]

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HSD, JHS, hEDS… oh my!
By Michelle O'Sullivan (Occ. Therapist)
In Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome
Posted February 4, 2018

HSD, JHS, hEDS… oh my!

There is so much confusion in our community about hypermobility diagnoses following the release of new criteria in March 2017. Is it HSD, JHS, hEDS… which is it? Here’s a little [...]

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What is Marfan Syndrome?
By Lucy Atkinson
In Hypermobility Information, Marfan Syndrome
Posted February 1, 2018

What is Marfan Syndrome?

Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the connective tissue disorders people in our community are living with each day. [...]

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Hypermobility Connect
PO BOX 272
FRENCHS FOREST, NSW 1640
AUSTRALIA
© 2018 Hypermobility Connect // Michelle O'Sullivan
 

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