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The Power of a Diagnosis
*Trigger warning: mentions adverse mental health effects of medication/suicidal ideation* In the lead up to Hypermobility Awareness Week, asked Sarah from Western Australia about her experience [...]
In Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Management Skills, Therapy Options
Posted Why is Rehabilitation of the hip and pelvic area so important to Hypermobile Individuals?
I am a physiotherapist in Brisbane with a special interest in hypermobility related connective tissue disorders so most of the clients I see have hypermobile-Ehlers Danlos Syndrome, Hypermobility [...]
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Genome, we have a problem: diagnosis change
How would you feel if you’d been battling along, learning everything you could about the rare disorder you’d been diagnosed with…. only to, 7 years later, be told that’s [...]