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Just like anyone who isn’t unwell, each day for me is different. On most days I snooze my alarm a few times, like most, before finally waking up for work. Before I even move I think about [...]

Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]

We have all had bruises that we can’t recall the origin of, we’re Hypermobile! Maybe a scar or two that we just don’t remember the story behind. But what happens when the [...]

Living with tubes connected to or coming out of your body is a very different kind of lifestyle. It can be frustrating, and scary, and at times a little gross. It can also be rewarding, and [...]

The hardest part of ending is starting over. Wouldn‘t you agree?   When you’re chronically ill, people tend to think you’re sick and that you have been this way for a [...]

I’m the first to admit I’m a worrier. Are you a worrier, too?   I worry about pretty much anything and everything, even things I have no need to worry about. Having Dysautonomia, [...]

Dealing with chronic illness and chronic pain is a long road to walk. If you’re lucky, you have friends and family to help you along the way. If you’re really lucky, you may have had [...]

Let it go, let it go…. Saying goodbye to 2016 was bitter-sweet for me.   Personally, 2016 was an amazing year! I graduated from nursing school, bought a house with the love of my life, [...]

The upside to chronic illness: a lot of couch time equals a lot of movies watched. Now if you have ever seen the movie “Cinderella” you know all about fairy godmothers, in fact, when [...]

Given the opportunity, would you like to see a snapshot of your life in five years? Ten years? Fifteen? A glimpse of what may be ahead?   Would you like to so see how you’ve aged, which [...]