I'm Lucy & I was diagnosed with Marfan Syndrome as a teenager. I’m an occasional blogger who often discusses life with chronic illness/health conditions. I also like coloured eyeliner and piercings. I’m from North West England. U.K.


You can read more over on my blog

My Posts On Hypermobility Connect

The daily realities of Marfan Syndrome

At the beginning of February, I made a vow to write at least one blog post a week in aid ...
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Finding my voice through Marfan Syndrome

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one ...
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Learning you have Marfan Syndrome

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death ...
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What is Marfan Syndrome?

Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the ...
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Making the Most of Time Indoors (when you have a chronic condition) || Hypermobility Connect

Making the most of time indoors (when you have a chronic condition)

If you’re living with a chronic condition like Marfan Syndrome, Ehlers-Danlos Syndrome or any hypermobility condition, and you’re anything like ...
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When It Is News You Are Not Expecting

It’s been two weeks & three days now since my last appointment with the Cardiologist, one of those “news you ...
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