I’m Mya, I’m 18 and from the Gold Coast, Australia.

I’m living with Hypermobile Ehlers-Danlos Syndrome and rely fully on the use of a wheelchair. I’ve been struggling with my Ehlers-Danlos for my whole life but was only diagnosed in 2014 after several years of misdiagnoses. I am TPN & Gastric Jejunum fed due to multiple different conditions, with the root cause being my EDS. I had to leave school due to my health, so I’m currently studying Community Services online and hope to one day become a psychologist.

I’m an avid Harry Potter fan, with J.K Rowlings being my queen! I look forward to sharing my thoughts and views on being a teenager living with this crazy roller-coaster of an illness!

My Posts On Hypermobility Connect

School is over… Celebrations for them, not for me

For millions of students across the country these words couldn’t come soon enough, and finally, after 13 long years, they ...
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The true Olympic Heroes: Our Paralympians

The 2016 Rio Olympics had a huge following, lots of media hype and great support from the Australian community, for ...
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