Hi! I am Renee, at 30 years young I am extroverted, inquisitive, adventurous and passionate by nature. I was diagnosed at 8 into the connective tissue dysplasia family and have had plenty of ups and downs along the way. Graduating with a degree in medical radiation science, I am a Radiation Therapist by day, a fun loving cake creator by night, and for 12 years have volunteered in various roles with ConnecTeD Foundation.

I fell in love, and we have two sensationally, life-changing daughters together; we are a family affected by Loeys-Dietz Syndrome. My eldest daughter and I have Loeys-Dietz, and I have 2 unique journeys: one as a patient, and one as a mother. Individually and as a family, we navigate our way through the roller coaster and adventure of life.

I look forward to sharing parts of my journey with you, and hopefully learn from yours too!

My Posts On Hypermobility Connect

The struggle to rest is real

So, I’m writing about this¬†photo, with a range of emotions. It IS my truth at the moment; without a doubt… ...
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After 9 long months of waiting, and as a patient with hypermobility, it was 9 months full of joy, excitement, ...
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