Hi! I am Renee, at 30 years young I am extroverted, inquisitive, adventurous and passionate by nature. I was diagnosed at 8 into the connective tissue dysplasia family and have had plenty of ups and downs along the way. Graduating with a degree in medical radiation science, I am a Radiation Therapist by day, a fun loving cake creator by night, and for 12 years have volunteered in various roles with ConnecTeD Foundation.

I fell in love, and we have two sensationally, life-changing daughters together; we are a family affected by Loeys-Dietz Syndrome. My eldest daughter and I have Loeys-Dietz, and I have 2 unique journeys: one as a patient, and one as a mother. Individually and as a family, we navigate our way through the roller coaster and adventure of life.

I look forward to sharing parts of my journey with you, and hopefully learn from yours too!

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