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Blog
Hypermobility Lecture Series

Hypermobility Lecture Series

April 18, 2022  Articles

Switching on the Lightbulb to see Hypermobility Disorders This blog has been written to give both clinicians and people living with hypermobility and associated conditions, (EDS/HSD) the [...]

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Double Zebra

Double Zebra

February 22, 2021  Disability, Disability Awareness, Hypermobility Spectrum Disorders
The Power of a Diagnosis

The Power of a Diagnosis

May 30, 2020  Emotional Impacts, Hypermobility Spectrum Disorders, Interviews, Mental Health
Genome, we have a problem: diagnosis change

Genome, we have a problem: diagnosis change

May 20, 2020  Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental Health
Marfan Syndrome: It can be a pain in the behind

Marfan Syndrome: It can be a pain in the behind

February 26, 2020  Articles
Christmas Day: It is forever full of surprises

Christmas Day: It is forever full of surprises

December 7, 2019  Adapting, Adults, Mindfulness
A lifetime of missed opportunities

A lifetime of missed opportunities

May 31, 2019  Articles
When the pieces finally fit: Hypermobile-EDS

When the pieces finally fit: Hypermobile-EDS

May 28, 2019  Chronic Illness, Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Thought Management, Understanding
Finding your way to keep moving forward with Hypermobility

Finding your way to keep moving forward with Hypermobility

May 28, 2019  Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Pain Management, Therapy Options
Therapy Spotlight: Paediatric Physio

Therapy Spotlight: Paediatric Physio

May 24, 2019  Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Pain Management, POTS, Therapy Options
Hypermobility Awareness Week 2019

Hypermobility Awareness Week 2019

May 24, 2019  Adults, Community, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Marfan Syndrome
One step forward, two steps back

One step forward, two steps back

May 9, 2019  Articles
Rare Diseases: What type of Zebra am I?

Rare Diseases: What type of Zebra am I?

February 25, 2019  Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness
Rare Diseases: A double-zebra

Rare Diseases: A double-zebra

February 25, 2019  Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding
Rare Diseases: Kyphoscoliotic Ehlers-Danlos Syndrome

Rare Diseases: Kyphoscoliotic Ehlers-Danlos Syndrome

February 25, 2019  Disability Awareness, Ehlers-Danlos Syndrome
Because it could change a life: Marfan Syndrome

Because it could change a life: Marfan Syndrome

February 20, 2019  Disability Awareness, Marfan Syndrome
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