The Burger Joint

Ever been to a burger joint? Ever hear of joint hypermobility? What on earth do the two have in common? Joint hypermobility is the presence of a larger than expected range of movement at a given [...]

Why Awareness?

While the whole of May has become the month to recognise & raise awareness of The Ehlers-Danlos Syndromes (EDS), we have chosen one week, May 7-13th to raise awareness of HYPERMOBILITY. [...]

My First CBT Session

BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I saw a counsellor for basic talking therapy last year, but I’m aware that this will [...]

Finally getting a diagnosis

Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. When you happen to stumble upon the right [...]

Dear Ehlers-Danlos Syndrome

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]