Young Adults

The hardest part of ending is starting over. Wouldn‘t you agree?   When you’re chronically ill, people tend to think you’re sick and that you have been this way for a [...]

We spend WAY too many hours of our lives sitting, whether that it is in cars, on the couch, or behind a computer screen. Unfortunately with the invention of laptop computers mobile devices, even [...]

“Well, of course we’re diagnosing you with it” were the exact words that fell out of my geneticist’s mouth that summer day. I nodded once, heartbroken but accepting. I turned to my mom then as I [...]

To the woman who served me in the RMS and chose not to judge me, Thank you. Thank you for treating me like a person. Thank you for not questioning the fact that I am in my 30’s and renewing my [...]

I’m the first to admit I’m a worrier. Are you a worrier, too?   I worry about pretty much anything and everything, even things I have no need to worry about. Having Dysautonomia, [...]

I was watching my binge series of choice, Grey’s Anatomy, and during an episode which I have watched at least ten times before, I heard for the first time this quote. It made me think of you. It [...]

Talking about hiding or displaying your condition may seem like a somewhat controversial topic to those who are deeply embedded in the hypermobility / spoonie / zebra / chronic illness [...]

Living with an invisible illness or let’s face it, any illness is frustrating. It’s frustrating, and it’s hard and inconvenient, and yet it’s something we must live with every single day. Now [...]

I was chatting with a friend the other day about a young person who had lived with a chronic illness since they were in primary school. This person was a typical “sick kid”. [...]

The moment you get a diagnosis, a huge number of things can change for you, yet, as astounding as it may seem, everyone else’s lives stay the same. For you & your inner world, the diagnosis [...]