Marfan Syndrome: It can be a pain in the behind
February is Marfan Syndrome Awareness month. Our resident Marfan Syndrome blogger, Lucy, has this extremely important message to share: Marfan Syndrome can be a real pain in the butt – [...]
What Christmas in Africa taught me
I have a confession to make: I’m not a huge ‘Christmas-lover’. I used to be. But a lot of things changed for me between 2006-2009, including the passing of my grandma with whom some of my [...]
A lifetime of missed opportunities
It is clearer now, more than ever, that people like Hallie, are having the trajectory of their lives determined by the missed opportunities of doctors to make an educated diagnosis of [...]
One step forward, two steps back
I am sure that everyone at some point has been able to relate to the phrase, “one step forward, two steps back”. Right? For those of us with a chronic illness, it can feel like that [...]
In Anxiety, Articles, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Psychology & Counselling
Posted Accepting my mental health
For Mental Health Awareness Month, we asked members of our hypermobility community to share their experiences of mental health as part of their hypermobility journey. This week Julie reflects on [...]
What do mental health professionals do?
There is much confusion among the patient (and sometimes the health community) about what mental health practitioners roles are – who does what, how and when. Am I right? I mean, what do [...]
When Modern Feminism Isn’t Inclusive of Disability
I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]