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  • Home
    • About
    • Blogging Team
    • Community Guidelines
  • About Hypermobility
    • The Spectrum of Hypermobility
    • Hypermobile Ehlers-Danlos Syndrome
    • HSD, JHS, hEDS… oh my!
    • Links
  • For Health Professionals
    • Join Our List
  • Shop
  • Blog
  • Contact

Carers

Carers
You, me & my connective tissues
By Guest Blogger
In Adapting, Carers, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Self-Care
Posted February 13, 2019

You, me & my connective tissues

Oh, the things I never thought I would have to explain. I’m 28, and I hobble into the physio rooms using a walking stick and the wall, trying for the life of me to pretend that everything is [...]

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Self-Care: Filling up your cup
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Carers, Management Skills, Parents
Posted March 5, 2017

Self-Care: Filling up your cup

When things go pear-shaped, which, when you’re a bendy body happens frequently, the one thing we can rely on is self-care strategies. Let’s talk ‘filling up your cup’! [...]

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Finding Balance – Can we?
By Rebecca Spokes
In Adapting, Carers, Management Skills, Pacing, Pain Management, Parents
Posted June 19, 2016

Finding Balance – Can we?

Today, I am writing to you wearing both my parent and adult with hypermobility hats. It is quite a personal post that I am sure many of you will understand. But one that I know I need right now [...]

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Motherhood
By Renee Velišček-Plišek
In Carers, Emotional Impacts, Parents
Posted May 22, 2016

Motherhood

After 9 long months of waiting, and as a patient with hypermobility, it was 9 months full of joy, excitement, love, but also risks, fears, what ifs, adjustments, and quick thinking (that could be [...]

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Pyjama Days for Fatigue Management
By My Bendy Body (Guest)
In Adapting, Adults, Carers, Management Skills, Pacing, Parents
Posted May 19, 2016

Pyjama Days for Fatigue Management

A few years ago I was introduced to the concept of pyjama days…. Literally, as you would imagine, a day where you don’t get out of your pyjamas. It’s an indoors day, a couch potato day… a rest [...]

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© 2018 Hypermobility Connect // Michelle O'Sullivan
 

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