Community Archives | Hypermobility Connect

In Community, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Pain Management, POTS, Self-Care

Posted November 29, 2018

10 tips for surviving conference day

If you’re heading to the Ehlers-Danlos Society Learning Conference in Australia in December, here are my 10 tips for surviving conference day, from a seasoned conference attendee! 1. Stay [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adults, Community, Emotional Impacts

Posted June 6, 2018

Building each other up: Why we need community

Over the years I have been involved in a wide range of communities, from school to university, Guiding/Scouting Movements, church, and sports (ha, that was a while ago!). And while they all [...]

By Megan Taylor

In Articles, Community, Disability, Disability Awareness

Posted May 23, 2018

When Modern Feminism Isn’t Inclusive of Disability

I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adults, Community, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Marfan Syndrome

Posted May 6, 2018

Why Awareness?

While the whole of May has become the month to recognise & raise awareness of The Ehlers-Danlos Syndromes (EDS), we have chosen one week, May 7-13th to raise awareness of HYPERMOBILITY. [...]

By Liz Harvie

In Adapting, Adults, Chronic Illness, Community

Posted February 28, 2018

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]