Ehlers-Danlos Syndrome Archives | Hypermobility Connect

In Adapting, Carers, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Self-Care

Posted February 13, 2019

You, me & my connective tissues

Oh, the things I never thought I would have to explain. I’m 28, and I hobble into the physio rooms using a walking stick and the wall, trying for the life of me to pretend that everything is [...]

By Michelle O'Sullivan (Occ. Therapist)

In Anxiety, Chronic Illness, Ehlers-Danlos Syndrome, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Pacing, Self-Care

Posted December 21, 2018

Not just surviving the holidays: Part 2

Following on from Not just surviving the holidays: Part 1, in this post we discuss some more challenges people with hypermobility can face during the holidays and some suggestions on how we might [...]

By Brittany App

In Anxiety, Boundaries, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Self-Care, Service animals, Thought Management

Posted December 20, 2018

Not just surviving the holidays: Part 1

For a lot of people, the holidays are a really exciting time. There are cookies and chocolate, hot cocoa, Santa, presents, shopping and family time. Those exact same things can be the most [...]

By Michelle O'Sullivan (Occ. Therapist)

In Community, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Pain Management, POTS, Self-Care

Posted November 29, 2018

10 tips for surviving conference day

If you’re heading to the Ehlers-Danlos Society Learning Conference in Australia in December, here are my 10 tips for surviving conference day, from a seasoned conference attendee! 1. Stay [...]

By Michelle O'Sullivan (Occ. Therapist)

In Boundaries, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Pacing, Psychology & Counselling, Self-Care

Posted November 22, 2018

7 ways to crisis-proof the holidays with hypermobility

This time of year can be stressful, as well as exciting and joyful. To keep the stress to a minimum we’ve come up with 7 ways to crisis-proof the holidays with hypermobility. 1. [...]

By Michelle O'Sullivan (Occ. Therapist)

In Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome

Posted November 18, 2018

Your Guide to Accessing the EDS Conference Sydney

I visited the Ehlers-Danlos Society Learning Conference venue at Macquarie University in October in preparation for the Conference in Sydney this Dec 7-8. Here is what I found and wanted to share [...]

By Michelle O'Sullivan (Occ. Therapist)

In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Pain Management

Posted November 15, 2018

Go see your doctor when you’re well

What a novel idea! Go see your doctor when you’re well? Why would you do that? We usually only go to the doctors when something is wrong. Makes sense, right? I mean they’re there to [...]

By Brittany App

In Adapting, Chronic Illness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Identity, Loeys-Dietz Syndrome, Marfan Syndrome, MCAD, POTS, Thought Management

Posted November 9, 2018

Do-re-mi-eds-pots-mcad-ocd medical dic-tion-ary

What alphabet do you use? The medical abbreviations that are common in the lives of a person with a chronic illness? You know, the do-re-mi-eds-pots-mcad-ocd medical dictionary? Do they define [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adapting, ADL, Chronic Illness, Disability, Dressing, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Pacing, Pain Management, Self-Care, Therapy Options

Posted October 24, 2018

When is the right time to see an occupational therapist?

People often hold off seeing health professionals until things are really, really bad. They think “Oh, I’ll just see if I can cope a little longer on my own”. When it comes to Occupational [...]

By Michelle O'Sullivan (Occ. Therapist)

Posted October 23, 2018

Why see an Occupational Therapist?

So why would you see an Occupational therapist? There are many reasons why! Occupational Therapists (OTs) are trained allied health professionals who work in a range of settings, from hospitals [...]

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