Posted
The Power of a Diagnosis
*Trigger warning: mentions adverse mental health effects of medication/suicidal ideation* In the lead up to Hypermobility Awareness Week, asked Sarah from Western Australia about her experience [...]
In Adapting, Carers, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Self-Care
Posted You, me & my connective tissues
Oh, the things I never thought I would have to explain. I’m 28, and I hobble into the physio rooms using a walking stick and the wall, trying for the life of me to pretend that everything is [...]
By Brittany App
In Anxiety, Boundaries, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Self-Care, Service animals, Thought Management
Posted Not just surviving the holidays: Part 1
For a lot of people, the holidays are a really exciting time. There are cookies and chocolate, hot cocoa, Santa, presents, shopping and family time. Those exact same things can be the most [...]
In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Pain Management
Posted Go see your doctor when you’re well
What a novel idea! Go see your doctor when you’re well? Why would you do that? We usually only go to the doctors when something is wrong. Makes sense, right? I mean they’re there to [...]
In Anxiety, Articles, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Psychology & Counselling
Posted Accepting my mental health
For Mental Health Awareness Month, we asked members of our hypermobility community to share their experiences of mental health as part of their hypermobility journey. This week Julie reflects on [...]
By Brittany App
In Adapting, ADL, Anxiety, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Medical Experiences, Mental Health, Self-Care, Service animals
Posted My Service Dog; My Lifeline
Service dog. What flashes in your mind when hearing those words? A blind man with a vision dog, a veteran who is an amputee? While these are two valid types of work of service dogs, there are [...]
In Anxiety, Chronic Illness, Emotional Impacts, Grief, Mental Health, Psychology & Counselling, Therapy Options, Thought Management, Understanding
Posted Did that just come out of your mouth? R U OK Day 2018
Timing is important. While you’re busy doing something else; when you’re about to get on a 12-hour flight; when your head is full of other noise… not the best times to ask the extremely important [...]
In Anxiety, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Mindfulness, Psychology & Counselling, Self-Care
Posted Caring for the most important part of you!
Caring for the most important part of you (your mental health) while simultaneously managing an unpredictable physical condition is nothing short of… complicated! I have a million other words I [...]
Building each other up: Why we need community
Over the years I have been involved in a wide range of communities, from school to university, Guiding/Scouting Movements, church, and sports (ha, that was a while ago!). And while they all [...]
In Adults, Chronic Illness, Emotional Impacts, Marfan Syndrome, Medical Experiences, Psychology & Counselling, Thought Management
Posted My First CBT Session
BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I saw a counsellor for basic talking therapy last year, but I’m aware that this will [...]