Identity Archives | Hypermobility Connect

In Adapting, Chronic Illness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Identity, Loeys-Dietz Syndrome, Marfan Syndrome, MCAD, POTS, Thought Management

Posted November 9, 2018

Do-re-mi-eds-pots-mcad-ocd medical dic-tion-ary

What alphabet do you use? The medical abbreviations that are common in the lives of a person with a chronic illness? You know, the do-re-mi-eds-pots-mcad-ocd medical dictionary? Do they define [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing

Posted April 5, 2018

Hypermobility: The condition that takes away…

Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]

By Liz Harvie

In Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Counselling, Thought Management

Posted March 1, 2018

Finally getting a diagnosis

Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. I’m 44 and live in the UK. I [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adults, Chronic Illness, Emotional Impacts, Identity

Posted March 12, 2017

You are not your diagnosis

When you live every day with a chronic condition, it’s easy to forget that you are not your diagnosis. Your diagnosis does not define you. It’s very easy to get caught [...]

By Michelle O'Sullivan (Occ. Therapist)

In Adults, Chronic Illness, Disability, Identity

Posted April 26, 2016

Revealing your diagnosis

Working out who, what, why and when to share your hypermobility diagnosis can be very confusing, and the cause of a lot of anxiety for some people. So let’s run through the whos, whats [...]