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The Power of a Diagnosis
*Trigger warning: mentions adverse mental health effects of medication/suicidal ideation* In the lead up to Hypermobility Awareness Week, asked Sarah from Western Australia about her experience [...]
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Genome, we have a problem: diagnosis change
How would you feel if you’d been battling along, learning everything you could about the rare disorder you’d been diagnosed with…. only to, 7 years later, be told that’s [...]
In Anxiety, Chronic Illness, Ehlers-Danlos Syndrome, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Pacing, Self-Care
Posted Not just surviving the holidays: Part 2
Following on from Not just surviving the holidays: Part 1, in this post we discuss some more challenges people with hypermobility can face during the holidays and some suggestions on how we might [...]
By Brittany App
In Anxiety, Boundaries, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Self-Care, Service animals, Thought Management
Posted Not just surviving the holidays: Part 1
For a lot of people, the holidays are a really exciting time. There are cookies and chocolate, hot cocoa, Santa, presents, shopping and family time. Those exact same things can be the most [...]
In Boundaries, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Pacing, Psychology & Counselling, Self-Care
Posted 7 ways to crisis-proof the holidays with hypermobility
This time of year can be stressful, as well as exciting and joyful. To keep the stress to a minimum we’ve come up with 7 ways to crisis-proof the holidays with hypermobility. 1. [...]
In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Pain Management
Posted Go see your doctor when you’re well
What a novel idea! Go see your doctor when you’re well? Why would you do that? We usually only go to the doctors when something is wrong. Makes sense, right? I mean they’re there to [...]
In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Health & Hypermobility, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Self-Care, Therapy Options
Posted Getting Your Daily Dose of Movement
What’s one of the ways your ‘Daily Dose of Movement’ can help you? Exercise is beneficial for management and prevention of acute and chronic mental illness. It is a fantastic part of your tool [...]
In Anxiety, Articles, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Psychology & Counselling
Posted Accepting my mental health
For Mental Health Awareness Month, we asked members of our hypermobility community to share their experiences of mental health as part of their hypermobility journey. This week Julie reflects on [...]
By Brittany App
In Adapting, ADL, Anxiety, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Medical Experiences, Mental Health, Self-Care, Service animals
Posted My Service Dog; My Lifeline
Service dog. What flashes in your mind when hearing those words? A blind man with a vision dog, a veteran who is an amputee? While these are two valid types of work of service dogs, there are [...]
In Anxiety, Chronic Illness, Emotional Impacts, Grief, Mental Health, Psychology & Counselling, Therapy Options, Thought Management, Understanding
Posted Did that just come out of your mouth? R U OK Day 2018
Timing is important. While you’re busy doing something else; when you’re about to get on a 12-hour flight; when your head is full of other noise… not the best times to ask the extremely important [...]