Christmas Day: It is forever full of surprises
Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]
Posted
Rare Diseases: What type of Zebra am I?
An Interview with Alexandra M.K. who is still wondering, “what type of zebra am I?” Your age: 36 What’s your diagnosis? Ehlers-Danlos Syndrome and the geneticist is still looking to [...]
In Anxiety, Chronic Illness, Ehlers-Danlos Syndrome, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Pacing, Self-Care
Posted Not just surviving the holidays: Part 2
Following on from Not just surviving the holidays: Part 1, in this post we discuss some more challenges people with hypermobility can face during the holidays and some suggestions on how we might [...]
By Brittany App
In Anxiety, Boundaries, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Grief, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Mental Health, Mindfulness, Self-Care, Service animals, Thought Management
Posted Not just surviving the holidays: Part 1
For a lot of people, the holidays are a really exciting time. There are cookies and chocolate, hot cocoa, Santa, presents, shopping and family time. Those exact same things can be the most [...]
In Anxiety, Chronic Illness, Ehlers-Danlos Syndrome, Emotional Impacts, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Mental Health, Mindfulness, Psychology & Counselling, Self-Care
Posted Caring for the most important part of you!
Caring for the most important part of you (your mental health) while simultaneously managing an unpredictable physical condition is nothing short of… complicated! I have a million other words I [...]
In Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Counselling, Therapy Options
Posted 4 keys to hypermobility pain management
I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]