Understanding Archives | Hypermobility Connect

In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Thought Management, Understanding

Posted May 28, 2019

When the pieces finally fit: Hypermobile-EDS

Sometimes I look back over my life, and I am thankful that I was born in the modern era. Ehlers-Danlos Syndrome runs in families. Considering all the trouble we have in 2019, to get the correct [...]

By Michelle O'Sullivan (Occ. Therapist)

In Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding

Posted February 25, 2019

Rare Diseases: A double-zebra

In preparation for Rare Diseases Day, 2019, I was able to interview Tianne, 24, who lives with both Ehlers-Danlos Syndrome and Marfan Syndrome (yes, it’s possible to have two connective tissue [...]

By Michelle O'Sullivan (Occ. Therapist)

In Anxiety, Chronic Illness, Emotional Impacts, Grief, Mental Health, Psychology & Counselling, Therapy Options, Thought Management, Understanding

Posted September 12, 2018

Did that just come out of your mouth? R U OK Day 2018

Timing is important. While you’re busy doing something else; when you’re about to get on a 12-hour flight; when your head is full of other noise… not the best times to ask the extremely important [...]