Guidelines for Social Media Engagement

 

Hypermobility Connect is a hopeful place. It is about looking forward to a better world, a better system, a better way of life. We like to think of it as the “home of hopefulness for hypermobiles."

And we plan to keep this space hopeful. We plan to keep this space helpful. We plan to keep this place as a haven for people with hypermobility to come and be inspired, to know they are not alone in their struggle with a hypermobile body (or hypermobile loved one), to have questions answered, and to learn.

We will not in any way tolerate behaviour that is contrary to the above.
That includes:

  • Bullying other readers/community members
  • Consistently posting negative comments on social media posts
  • Harassment*
  • Abusive and demanding behaviour*
  • Attacking, antagonising or demeaning comments*

The administrators of the page Hypermobility Connect have the ability to block users from interacting on social media accounts, at their own discretion. People who breach these guidelines in a minor way will be given a reminder via direct message. Anything perceived as a major* breach of the guidelines, will not necessarily be given a warning. No discussion will be entered into. Let’s all play by the rules so we can keep this community a unified, hopeful, haven for us all. Please respect these guidelines and understand that we take breaching these guidelines seriously and it may result in you being blocked from the Hypermobility Connect network.

Please note, comments which are in breach of the guidelines may be deleted without warning. Where possible you will be contacted by an administrator who will respectfully explain why your comment was deleted. You are also welcome to ask why if you have not been contacted directly.

Always remember, you are responsible for your own behaviour.

So, hopeful-hypermobiles, enjoy your haven and know that it will be protected.

Together let's keep this space hopeful and helpful.

 

Hypermobility Connect Administrators

 

9 hours ago
The daily realities of Marfan Syndrome | Hypermobility Connect

In our final week of our Marfan Awareness Series, Lucy speaks openly about her struggles, the daily realities of living with Marfan Syndrome.

It's not all shiny & happy, it's a life often controlled ... See more

if my back won't allow me to type on my computer, then a blog post isn't going to happen, no matter how much I endeavour to get it done. That's the Marfan-Life. That is one of the daily realities of ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
22 hours ago
Chronic Conditions Course | eCentreClinic | Macquarie University

(EDIT: AUSTRALIANS ONLY) While I haven’t completed this myself, I have heard great things about the eCourses provided by Macquarie University. If you meet the criteria you might like to take a look ... See more

The Chronic Conditions Course is a new free, online and internet-delivered education program, which is designed to provide good information and teach practical skills for managing the impact of ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
1 day ago
Timeline Photos

Oh my goodness. There is nothing more true. I have such a strong belief in the power of attitude. The way we think about things is the way they become. This is such a huge part of the Hypermobility ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
1 day ago

AUSTRALIAN'S: Have you applied for NDIS funding?

Were you:

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
2 days ago

HOW IS THE BODY AFFECTED IN ❤️MARFAN SYNDROME❤️?

"Marfan syndrome and related disorders affect the body’s connective tissue. Connective tissue holds the body together and plays a role in ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
3 days ago
Timeline Photos

Somedays I agree with this. Somedays I struggle to find my claws. It's hard going, this whole living with a chronic life-long condition thing... isn't it?

But I think even with broken wings, we put ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
4 days ago
Timeline Photos

What has been the most satisfying part of your week?

⭐️ We would love to hear about the things that made you feel good - whether it was fulfilled, loved, accomplished - whatever gave you some ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
5 days ago
Timeline Photos

⭐️ Pacing. Oh how we love thee!

How are you going to pace yourself this weekend so that you can ENJOY your weekend, and not write yourself off at the same time?

Share your plans & ideas so ... See more

LIKE
LOVE
HAHA
WOW
SAD
ANGRY
1 week ago
Finding my voice through Marfan Syndrome | Hypermobility Connect

As Marfan Awareness Month continues, this week Lucy shares some of the bonuses she has found along the way, living with Marfan Syndrome.

Can you relate?

-|-|-|-

#marfanawarenessmonth ... See more

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I'm finding my voice through Marfan Syndrome.

LIKE
LOVE
HAHA
WOW
SAD
ANGRY