Guidelines for Social Media Engagement

 

Hypermobility Connect is a hopeful place. It is about looking forward to a better world, a better system, a better way of life. We like to think of it as the “home of hopefulness for hypermobiles."

And we plan to keep this space hopeful. We plan to keep this space helpful. We plan to keep this place as a haven for people with hypermobility to come and be inspired, to know they are not alone in their struggle with a hypermobile body (or hypermobile loved one), to have questions answered, and to learn.

We will not in any way tolerate behaviour that is contrary to the above.
That includes:

  • Bullying other readers/community members
  • Consistently posting negative comments on social media posts
  • Harassment*
  • Abusive and demanding behaviour*
  • Attacking, antagonising or demeaning comments*

The administrators of the page Hypermobility Connect have the ability to block users from interacting on social media accounts, at their own discretion. People who breach these guidelines in a minor way will be given a reminder via direct message. Anything perceived as a major* breach of the guidelines, will not necessarily be given a warning. No discussion will be entered into. Let’s all play by the rules so we can keep this community a unified, hopeful, haven for us all. Please respect these guidelines and understand that we take breaching these guidelines seriously and it may result in you being blocked from the Hypermobility Connect network.

Please note, comments which are in breach of the guidelines may be deleted without warning. Where possible you will be contacted by an administrator who will respectfully explain why your comment was deleted. You are also welcome to ask why if you have not been contacted directly.

Always remember, you are responsible for your own behaviour.

So, hopeful-hypermobiles, enjoy your haven and know that it will be protected.

Together let's keep this space hopeful and helpful.

 

Hypermobility Connect Administrators

 

17 hours ago
Timeline Photos

The journey to diagnosis, for many, is nothing less than a nightmare. A horror story for others. We raise awareness of our hypermobility conditions so that others don't have to go through the horror ... See more

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19 hours ago

If we had Hypermobility Connect branded (on the back) Christmas Cards, would you buy them to give to people to help raise awareness?

They would be about $13 for 10 cards + Postage.

Yes or No?
And ... See more

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1 day ago
Don't Write Off These Symptoms As "Just Anxiety"

"[DYSAUTONOMIA] doesn't mean we can't do things, it just means we need to do things differently, and it means that we might need rest in ways that seem strange" ~ Rachel Romu

Here's what you need to know about dysautonomia, according to researchers and young women living with it.

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1 day ago
Photographer Raises Awareness Of Kids With Rare Diseases In Striking Series

Truly beautiful.

The mom wants to inject beauty into an often uninviting hospital experience.

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2 days ago
AJ+

Such a beautiful thing to see these women enjoying themselves so much 👸👗👑🎶💅🏻💄 however, I personally believe there are lots of things wrong with this idea, but what's your ... See more

She's got style, she's got grace and she's in a wheelchair – get used to it.

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3 days ago

Literature update:

Latest study out of Norway...
"Subjective health complaints and illness perception amongst adults with Joint Hypermobility Syndrome/Ehlers–Danlos Syndrome-Hypermobility Type – ... See more

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3 days ago
Timeline Photos

Rest. Pacing.

It's so important to managing hypermobility related conditions. We need to rest today so that we can 'do' tomorrow.

Whatever it is we need to do tomorrow, we can face it more easily ... See more

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4 days ago
Timeline Photos

Swivel Seat - The person who designed this was a thinker! A Swivel Seat is a cushion which spins 360 degrees. You can put it onto almost any chair (semi-firm to firm is best) and it allows you to ... See more

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Create awareness. Share it!