AUSSIES, LAST CHANCE:
Australian Patients 🇦🇺
If you or your child have suffered or are suffering from gastrointestinal motility issues such as:
GASTROPARESIS
COLONIC INERTIA
IBS
DYSPHAGIA
SWALLOWING ISSUES ETC
AND HAVE STRUGGLED FOR SUPPORT/DIAGNOSTICS AND ADEQUATE TREATMENT
I NEED YOUR HELP!
On March 14th, Campbelltown Council officially released a Strategic Vision for their Health and Education Precinct in state parliament that INCLUDES a state referral centre in gut motility which would turn Dr Vincent Ho’s vision to establish a Centre of Excellence for Motility Issues into reality.
The aim of this clinic would be to treat all patients across the state, including paediatrics with complex Gastrointestinal disorders and raise awareness of these disabling illnesses. It will help ensure people suffering from these disorders are diagnosed in a timely manner and treated appropriately.
We nearly lost our daughter 2 years ago due to an 18 month misdiagnosis of severe motility issues and I know that many other families and individuals have suffered the same awful situation. Some patients may never recover after being misdiagnosed for so long.
We live over 700km from Sydney but I am passionate about changing these outcomes for affected patients and have been actively lobbying our state government to raise awareness of these issues.
On May 1st, my local member has secured me a meeting with the NSW Health Minister, The Hon. Brad Hazzard in Sydney and I would like to show him how desperately this clinic is needed by so many people.
There is strong bipartisan support in parliament but it still needs formal approval and funding!
I’m asking people to email me their personal stories. It can be as long or as short as you want - the point is that we need to show the Health Minister that we exist and we need help!
In your story it would be good to highlight the following points:
1. The impact of having a severe motility disorder and
2. The problems you have faced with accessing diagnostics and care in the current health system.
3. Resources/treatments you need access to.
Stories can be emailed to me at lmontey@bigpond.net.au
By no later than this Friday 27th April.
Together we can help make this desperately needed clinic happen.
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