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  • About Hypermobility
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Tag Archives for: "awareness raising"
awareness raising
Hypermobility Awareness Week 2019
By Hypermobility Connect
In Adults, Community, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Marfan Syndrome
Posted May 24, 2019

Hypermobility Awareness Week 2019

While the whole of May has become the month to recognise & raise awareness of The Ehlers-Danlos Syndromes (EDS), we have chosen one week, May 25th-31st to raise awareness of HYPERMOBILITY, [...]

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Rare Diseases: What type of Zebra am I?
By Michelle O'Sullivan (Occ. Therapist)
In Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness
Posted February 25, 2019

Rare Diseases: What type of Zebra am I?

An Interview with Alexandra M.K. who is still wondering, “what type of zebra am I?” Your age: 36 What’s your diagnosis? Ehlers-Danlos Syndrome and the geneticist is still looking to [...]

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Rare Diseases: A double-zebra
By Michelle O'Sullivan (Occ. Therapist)
In Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding
Posted February 25, 2019

Rare Diseases: A double-zebra

In preparation for Rare Diseases Day, 2019, I was able to interview Tianne, 24, who lives with both Ehlers-Danlos Syndrome and Marfan Syndrome (yes, it’s possible to have two connective tissue [...]

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SHOUT A LITTLE LOUDER: Ehlers-Danlos Awareness Month (May)
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Disability Awareness
Posted May 2, 2016

SHOUT A LITTLE LOUDER: Ehlers-Danlos Awareness Month (May)

If you have Ehlers-Danlos Syndrome one of the very first things you would have done is learn how to pronounce and spell it. And it’s not something you are going to forget anytime soon: just about [...]

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