A positive pain management experience
Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had my very first appointment with the Pain Management Consultant. The reason my doctor [...]
Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had my very first appointment with the Pain Management Consultant. The reason my doctor [...]
BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I saw a counsellor for basic talking therapy last year, but I’m aware that this will [...]
Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]
First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]
Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]
Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]
My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]
If you’re living with a chronic condition like Marfan Syndrome, Ehlers-Danlos Syndrome or any hypermobility condition, and you’re anything like me, you’ll spend most of your [...]
Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]
It’s been two weeks & three days now since my last appointment with the Cardiologist, one of those “news you are not expecting” appointments. I have to see him regularly [...]