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  • Home
    • About
    • Blogging Team
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  • About Hypermobility
    • The Spectrum of Hypermobility
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    • HSD, JHS, hEDS… oh my!
    • Links
  • For Health Professionals
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All of our Blogs!

Tag Archives for: "chronic illness"
chronic illness
Christmas Day: It is forever full of surprises
By Michelle O'Sullivan
In Adapting, Adults, Mindfulness
Posted December 7, 2019

Christmas Day: It is forever full of surprises

Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]

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Are your clothes out to get you?
By Megan Taylor
In Adapting, ADL, Adults, Disability, Dressing, Management Skills, Self-Care
Posted March 22, 2018

Are your clothes out to get you?

First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]

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The reality of a flare-up: Living with EDS & Dysautonomia
By Erica Ortiz
In Adapting, Chronic Illness, Pain Management
Posted March 15, 2018

The reality of a flare-up: Living with EDS & Dysautonomia

Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]

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8 Tips for planning a solo day out, like a boss!
By Megan Taylor
In Adults, Management Skills, Pacing, Pain Management
Posted March 8, 2018

8 Tips for planning a solo day out, like a boss!

I went to my very first pride march this weekend! It took some epic planning, but I learned a lot from this and wanted to share with you my 8 tips for planning a solo day out, like a boss! [...]

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Finally getting a diagnosis
By Liz Harvie
In Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Counselling, Thought Management
Posted March 1, 2018

Finally getting a diagnosis

Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis.   I’m 44 and live in the UK. I [...]

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Dear Ehlers-Danlos Syndrome
By Liz Harvie
In Adapting, Adults, Chronic Illness, Community
Posted February 28, 2018

Dear Ehlers-Danlos Syndrome

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]

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Finding my voice through Marfan Syndrome
By Lucy Atkinson
In Adults, Chronic Illness, Emotional Impacts
Posted February 15, 2018

Finding my voice through Marfan Syndrome

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]

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What is Marfan Syndrome?
By Lucy Atkinson
In Hypermobility Information, Marfan Syndrome
Posted February 1, 2018

What is Marfan Syndrome?

Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the connective tissue disorders people in our community are living with each day. [...]

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6 Tips to Prepare You for Mystery Injuries
By Erica Ortiz
In Adults
Posted January 25, 2018

6 Tips to Prepare You for Mystery Injuries

We have all had bruises that we can’t recall the origin of, we’re Hypermobile! Maybe a scar or two that we just don’t remember the story behind. But what happens when the [...]

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Living with Tubes (of all kinds)
By Erica Ortiz
In Adapting, Adults, Chronic Illness, Disability Awareness
Posted January 10, 2018

Living with Tubes (of all kinds)

Living with tubes connected to or coming out of your body is a very different kind of lifestyle. It can be frustrating, and scary, and at times a little gross. It can also be rewarding, and [...]

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