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Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]

First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]

Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]

I went to my very first pride march this weekend! It took some epic planning, but I learned a lot from this and wanted to share with you my 8 tips for planning a solo day out, like a boss! [...]

Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis.   I’m 44 and live in the UK. I [...]

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]

Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the connective tissue disorders people in our community are living with each day. [...]

We have all had bruises that we can’t recall the origin of, we’re Hypermobile! Maybe a scar or two that we just don’t remember the story behind. But what happens when the [...]

Living with tubes connected to or coming out of your body is a very different kind of lifestyle. It can be frustrating, and scary, and at times a little gross. It can also be rewarding, and [...]