By Michelle O'Sullivan (Occ. Therapist) In Ehlers-Danlos Syndrome, Loeys-Dietz Syndrome, Mental HealthPosted May 20, 2020Genome, we have a problem: diagnosis changeHow would you feel if you’d been battling along, learning everything you could about the rare disorder you’d been diagnosed with…. only to, 7 years later, be told that’s [...] READ MORE