When Modern Feminism Isn’t Inclusive of Disability
I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]
In Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing
Posted Hypermobility: The condition that takes away…
Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]
In Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Counselling, Therapy Options
Posted 4 keys to hypermobility pain management
I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]
Are your clothes out to get you?
First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]
By Liz Harvie
In Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Counselling, Thought Management
Posted Finally getting a diagnosis
Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. I’m 44 and live in the UK. I [...]
Dear Ehlers-Danlos Syndrome
Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]
In Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management
Posted All I want for Christmas is for you to read this post
Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]
What do you need people to understand & do for you this Christmas?
Let’s face it, Christmas isn’t always joyful. I don’t think I had really ever grasped that until just over a decade ago, 2006 to be exact. There are lots of reasons why people struggle at [...]
Top 5 Kitchen Aids for Hypermobility
Over the last few months, I’ve been sharing on our Facebook & Instagram some of my favourite gadgets and assistive devices that I have personally found helpful, or one of my friends living [...]
10 Things I Hate About You, Modern Medicine
The longest relationship of my life, apart from those with my family members, is my relationship with modern medicine. It’s been a fiery one, I can tell you that much. It’s been filled with many, [...]