When Modern Feminism Isn’t Inclusive of Disability
I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]
I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]
Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]
I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]
First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]
Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. I’m 44 and live in the UK. I [...]
Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]
Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]
Let’s face it, Christmas isn’t always joyful. I don’t think I had really ever grasped that until just over a decade ago, 2006 to be exact. There are lots of reasons why people struggle at [...]
Over the last few months, I’ve been sharing on our Facebook & Instagram some of my favourite gadgets and assistive devices that I have personally found helpful, or one of my friends living [...]
The longest relationship of my life, apart from those with my family members, is my relationship with modern medicine. It’s been a fiery one, I can tell you that much. It’s been filled with many, [...]