Christmas Day: It is forever full of surprises
Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]
A positive pain management experience
Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had my very first appointment with the Pain Management Consultant. The reason my doctor [...]
In Adults, Chronic Illness, Emotional Impacts, Marfan Syndrome, Medical Experiences, Psychology & Counselling, Thought Management
Posted My First CBT Session
BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I saw a counsellor for basic talking therapy last year, but I’m aware that this will [...]
In Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing
Posted Hypermobility: The condition that takes away…
Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]
By Liz Harvie
In Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Counselling, Thought Management
Posted Finally getting a diagnosis
Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. I’m 44 and live in the UK. I [...]
Learning you have Marfan Syndrome
When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]
Posted
5 Tips for Managing Christmas Day Anxiety
If you’ve been living with anxiety for a while, chances are you know whether a day like Christmas day will phase you. If you think it will, you might need some of my 5 tips for managing Christmas [...]
What do you need people to understand & do for you this Christmas?
Let’s face it, Christmas isn’t always joyful. I don’t think I had really ever grasped that until just over a decade ago, 2006 to be exact. There are lots of reasons why people struggle at [...]
When It Is News You Are Not Expecting
It’s been two weeks & three days now since my last appointment with the Cardiologist, one of those “news you are not expecting” appointments. I have to see him regularly [...]
10 Things I Hate About You, Modern Medicine
The longest relationship of my life, apart from those with my family members, is my relationship with modern medicine. It’s been a fiery one, I can tell you that much. It’s been filled with many, [...]