Building each other up: Why we need community
Over the years I have been involved in a wide range of communities, from school to university, Guiding/Scouting Movements, church, and sports (ha, that was a while ago!). And while they all [...]
To hide or not to hide? That is the question
Talking about hiding or displaying your condition may seem like a somewhat controversial topic to those who are deeply embedded in the hypermobility / spoonie / zebra / chronic illness [...]
High School with Undiagnosed Hypermobility
Let us be honest. I hated high school. It was one of the most miserable times of my life. I was in pain and at that stage a medical mystery, I had undiagnosed hypermobility (which turned out to [...]
Managing a social life: Trying to find that “balance”
One of the hardest things about having a chronic condition like a Hypermobility Spectrum Disorder is trying to find a balance between resting when your body tells you it needs to and living a [...]
Friends with the same condition
Doctors, in my experience, tend not to approve of patients becoming friends: “They’ll make each other sicker”; “they’ll become obsessed with their illness”; “it’s unhealthy”. Personally, I [...]