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    • About
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  • About Hypermobility
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    • HSD, JHS, hEDS… oh my!
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Tag Archives for: "genetics"
genetics
Rare Diseases: What type of Zebra am I?
By Michelle O'Sullivan (Occ. Therapist)
In Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness
Posted February 25, 2019

Rare Diseases: What type of Zebra am I?

An Interview with Alexandra M.K. who is still wondering, “what type of zebra am I?” Your age: 36 What’s your diagnosis? Ehlers-Danlos Syndrome and the geneticist is still looking to [...]

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Rare Diseases: A double-zebra
By Michelle O'Sullivan (Occ. Therapist)
In Disability Awareness, Ehlers-Danlos Syndrome, Marfan Syndrome, Understanding
Posted February 25, 2019

Rare Diseases: A double-zebra

In preparation for Rare Diseases Day, 2019, I was able to interview Tianne, 24, who lives with both Ehlers-Danlos Syndrome and Marfan Syndrome (yes, it’s possible to have two connective tissue [...]

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Jo Berry on “You Can’t Ask That”, ABC TV
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Disability, Disability Awareness
Posted August 4, 2016

Jo Berry on “You Can’t Ask That”, ABC TV

In case you missed seeing it, our very own resident blogger, Jo Berry was on the ABC’s “You Can’t Ask That – Wheelchair Users” episode last night. She did an [...]

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Motherhood
By Renee Velišček-Plišek
In Carers, Emotional Impacts, Parents
Posted May 22, 2016

Motherhood

After 9 long months of waiting, and as a patient with hypermobility, it was 9 months full of joy, excitement, love, but also risks, fears, what ifs, adjustments, and quick thinking (that could be [...]

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SHOUT A LITTLE LOUDER: Ehlers-Danlos Awareness Month (May)
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Disability Awareness
Posted May 2, 2016

SHOUT A LITTLE LOUDER: Ehlers-Danlos Awareness Month (May)

If you have Ehlers-Danlos Syndrome one of the very first things you would have done is learn how to pronounce and spell it. And it’s not something you are going to forget anytime soon: just about [...]

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