Christmas Day: It is forever full of surprises
Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]
Building each other up: Why we need community
Over the years I have been involved in a wide range of communities, from school to university, Guiding/Scouting Movements, church, and sports (ha, that was a while ago!). And while they all [...]
In Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome
Posted The Burger Joint
Ever been to a burger joint? Ever hear of joint hypermobility? What on earth do the two have in common? Joint hypermobility is the presence of a larger than expected range of movement at a given [...]
In Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing
Posted Hypermobility: The condition that takes away…
Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]
In Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Counselling, Therapy Options
Posted 4 keys to hypermobility pain management
I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]
Are your clothes out to get you?
First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]
8 Tips for planning a solo day out, like a boss!
I went to my very first pride march this weekend! It took some epic planning, but I learned a lot from this and wanted to share with you my 8 tips for planning a solo day out, like a boss! [...]
In Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome
Posted HSD, JHS, hEDS… oh my!
There is so much confusion in our community about hypermobility diagnoses following the release of new criteria in March 2017. Is it HSD, JHS, hEDS… which is it? Here’s a little [...]
Posted
5 Tips for Managing Christmas Day Anxiety
If you’ve been living with anxiety for a while, chances are you know whether a day like Christmas day will phase you. If you think it will, you might need some of my 5 tips for managing Christmas [...]
In Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management
Posted All I want for Christmas is for you to read this post
Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]