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  • About Hypermobility
    • The Spectrum of Hypermobility
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    • HSD, JHS, hEDS… oh my!
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All of our Blogs!

Tag Archives for: "hypermobility"
hypermobility
Double Zebra
By Michelle O'Sullivan (Occ. Therapist)
In Disability, Disability Awareness, Hypermobility Spectrum Disorders
Posted February 22, 2021

Double Zebra

Rare diseases are highlighted on Rare Disease Day each year. This year we featured Nail Patella Syndrome combined with Hypermobility Spectrum Disorder!

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The Power of a Diagnosis
By Hypermobility Connect
In Emotional Impacts, Hypermobility Spectrum Disorders, Interviews, Mental Health
Posted May 30, 2020

The Power of a Diagnosis

*Trigger warning: mentions adverse mental health effects of medication/suicidal ideation* In the lead up to Hypermobility Awareness Week, asked Sarah from Western Australia about her experience [...]

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Christmas Day: It is forever full of surprises
By Michelle O'Sullivan
In Adapting, Adults, Mindfulness
Posted December 7, 2019

Christmas Day: It is forever full of surprises

Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]

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When the pieces finally fit: Hypermobile-EDS
By Anel van Schalkwyk
In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Thought Management, Understanding
Posted May 28, 2019

When the pieces finally fit: Hypermobile-EDS

Sometimes I look back over my life, and I am thankful that I was born in the modern era. Ehlers-Danlos Syndrome runs in families. Considering all the trouble we have in 2019, to get the correct [...]

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Finding your way to keep moving forward with Hypermobility
By Caitlin Dinning
In Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Pain Management, Therapy Options
Posted May 28, 2019

Finding your way to keep moving forward with Hypermobility

Hypermobile Ehlers-Danlos Syndrome a genetic condition, it is in our DNA, and it’s NOT CURABLE! I have written that in capitals because it’s a concept that’s hard to grasp. Take [...]

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Therapy Spotlight: Paediatric Physio
By Hypermobility Connect
In Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Pain Management, POTS, Therapy Options
Posted May 24, 2019

Therapy Spotlight: Paediatric Physio

We are doing a series on different therapies over the next few months, and are interviewing some therapists who have experience working with hypermobility conditions. To kick us off, we have [...]

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Hypermobility Awareness Week 2019
By Hypermobility Connect
In Adults, Community, Disability Awareness, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Marfan Syndrome
Posted May 24, 2019

Hypermobility Awareness Week 2019

While the whole of May has become the month to recognise & raise awareness of The Ehlers-Danlos Syndromes (EDS), we have chosen one week, May 25th-31st to raise awareness of HYPERMOBILITY, [...]

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Rare Diseases: What type of Zebra am I?
By Michelle O'Sullivan (Occ. Therapist)
In Disability Awareness, Ehlers-Danlos Syndrome, Mindfulness
Posted February 25, 2019

Rare Diseases: What type of Zebra am I?

An Interview with Alexandra M.K. who is still wondering, “what type of zebra am I?” Your age: 36 What’s your diagnosis? Ehlers-Danlos Syndrome and the geneticist is still looking to [...]

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Because it could change a life: Marfan Syndrome
By Lucy Atkinson
In Disability Awareness, Marfan Syndrome
Posted February 20, 2019

Because it could change a life: Marfan Syndrome

Marfan Syndrome awareness month is upon us again! If you’ve followed my blogs in the past, you’re probably thinking “here we go again; she’s talking about Marfan Syndrome AGAIN” however [...]

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You, me & my connective tissues
By Guest Blogger
In Adapting, Carers, Disability, Ehlers-Danlos Syndrome, Emotional Impacts, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome, Self-Care
Posted February 13, 2019

You, me & my connective tissues

Oh, the things I never thought I would have to explain. I’m 28, and I hobble into the physio rooms using a walking stick and the wall, trying for the life of me to pretend that everything is [...]

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