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  • Home
    • About
    • Blogging Team
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  • About Hypermobility
    • The Spectrum of Hypermobility
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    • HSD, JHS, hEDS… oh my!
    • Links
  • For Health Professionals
    • Join Our List
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Tag Archives for: "learning you have marfan syndrome"
learning you have marfan syndrome
Learning you have Marfan Syndrome
By Lucy Atkinson
In Adults, Chronic Illness, Emotional Impacts, Medical Experiences
Posted February 8, 2018

Learning you have Marfan Syndrome

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]

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