Posted
The Power of a Diagnosis
*Trigger warning: mentions adverse mental health effects of medication/suicidal ideation* In the lead up to Hypermobility Awareness Week, asked Sarah from Western Australia about her experience [...]
In Chronic Illness, Disability, Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Independence, Joint Hypermobility Syndrome, Thought Management, Understanding
Posted When the pieces finally fit: Hypermobile-EDS
Sometimes I look back over my life, and I am thankful that I was born in the modern era. Ehlers-Danlos Syndrome runs in families. Considering all the trouble we have in 2019, to get the correct [...]
In Ehlers-Danlos Syndrome, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Management Skills, Marfan Syndrome, Pain Management, Therapy Options
Posted Finding your way to keep moving forward with Hypermobility
Hypermobile Ehlers-Danlos Syndrome a genetic condition, it is in our DNA, and it’s NOT CURABLE! I have written that in capitals because it’s a concept that’s hard to grasp. Take [...]
In Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Counselling, Therapy Options
Posted 4 keys to hypermobility pain management
I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]
8 Tips for planning a solo day out, like a boss!
I went to my very first pride march this weekend! It took some epic planning, but I learned a lot from this and wanted to share with you my 8 tips for planning a solo day out, like a boss! [...]
6 Tips to Prepare You for Mystery Injuries
We have all had bruises that we can’t recall the origin of, we’re Hypermobile! Maybe a scar or two that we just don’t remember the story behind. But what happens when the [...]
Posted
5 Tips for Managing Christmas Day Anxiety
If you’ve been living with anxiety for a while, chances are you know whether a day like Christmas day will phase you. If you think it will, you might need some of my 5 tips for managing Christmas [...]
In Adapting, Adults, Disability, Emotional Impacts, Management Skills, Mental Health, Pacing, Pain Management
Posted All I want for Christmas is for you to read this post
Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]
Seven of the Best General Aids for Hypermobility
Following on from our Top 5 Kitchen Aids from our #HypermobilityHelp series, it’s time to look at the general aids for hypermobility that I have found helpful for living with hypermobility. [...]
Hyper-vigilance vs. Complacency in Hypermobility
Since the age of 12, due to the regularity at which I needed physio or specialists appointments, my family and I have referred to me as “a frequent flyer”. You know, a frequent flyer [...]