All of our Blogs!

Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]

If you’re living with a chronic condition like Marfan Syndrome, Ehlers-Danlos Syndrome or any hypermobility condition, and you’re anything like me, you’ll spend most of your [...]

When you live every day with a chronic condition, it’s easy to forget that you are not your diagnosis.   Your diagnosis does not define you.   It’s very easy to get caught [...]

Really? Being more positive JUST takes practice? To be honest, today I could have told Mr McGill to go jump in a lake and take his positivity with him. But that’s just today.   Actually, [...]

Just a dash of fun helps the tough stuff die down. Mary Poppins was on to something with that spoonful of sugar for sure. Lately, life has been tough. Pain, disability, medical issues, stress. It [...]

When living with hypermobility, it sometimes feels like you are sitting on the sidelines watching life go on around you,  unable to participate.   An outsider looking in.   Feeling more [...]

When you can no longer pursue your dream career, you find yourself wondering – what on earth am I going to do? When this first happened to me I found myself saying over and over “The [...]

In case you missed seeing it, our very own resident blogger, Jo Berry was on the ABC’s “You Can’t Ask That – Wheelchair Users” episode last night. She did an [...]