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I’m going to be contentious here. I have a problem with the modern feminism movement. I am a feminist; wholeheartedly and unashamedly. But part of being a feminist is holding both yourself and [...]

Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]

At the beginning of February, I made a vow to write at least one blog post a week in aid of Marfan Syndrome Awareness Month. That has proven to be a very challenging task, but I’m trying. [...]

My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one the amazing things for me? I’m finding my voice through Marfan Syndrome. [...]

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]

Following on from last weeks post about What we need at Christmas, we recognise that it’s extremely difficult for people to understand what it feels like to have a hypermobility condition, [...]

Let’s face it, Christmas isn’t always joyful. I don’t think I had really ever grasped that until just over a decade ago, 2006 to be exact. There are lots of reasons why people struggle at [...]

As patients with chronic conditions, we’ve all heard doctors, and health professionals say ridiculous things to us, have we not? There are so many things that a doctor should never say to a [...]

I’m the first to admit I’m a worrier. Are you a worrier, too?   I worry about pretty much anything and everything, even things I have no need to worry about. Having Dysautonomia, [...]

|This blog post contains the word ‘shit’. If you’re not a fan of it, feel free to stop reading now|   Having our shit together.   How often do we think and talk about [...]