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Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had my very first appointment with the Pain Management Consultant. The reason my doctor [...]

Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]

Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]

When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death sentence. No word of a lie, I thought the doctor was trying to tell me I was about to die. [...]

The longest relationship of my life, apart from those with my family members, is my relationship with modern medicine. It’s been a fiery one, I can tell you that much. It’s been filled with many, [...]

As patients with chronic conditions, we’ve all heard doctors, and health professionals say ridiculous things to us, have we not? There are so many things that a doctor should never say to a [...]

I’ve just finished having a conversation with a friend about “normal”… Normal was a word that we were steered clear of in our psych & social sciences subjects when I was studying. [...]

|This blog post contains the word ‘shit’. If you’re not a fan of it, feel free to stop reading now|   Having our shit together.   How often do we think and talk about [...]

Chances are if you’re reading this, you or someone you love is hypermobile. Therefore, there is an even better chance that today, December 26, you’re living or witnessing The Hangover, [...]

We realise that a lot people with hypermobility would find the blogging brief: “reality with a positive spin” quite challenging, because life with hypermobility is itself challenging. [...]