To the woman who chose not to judge me: Thank you
To the woman who served me in the RMS and chose not to judge me, Thank you. Thank you for treating me like a person. Thank you for not questioning the fact that I am in my 30’s and renewing my [...]
To hide or not to hide? That is the question
Talking about hiding or displaying your condition may seem like a somewhat controversial topic to those who are deeply embedded in the hypermobility / spoonie / zebra / chronic illness [...]
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Not all ‘zebras’ are ‘zebras’
I was on a business-related Facebook forum recently, and the owner of the forum posted about her latest in a string of many illnesses and injuries. Having seen her in videos and photographs, I [...]
High School with Undiagnosed Hypermobility
Let us be honest. I hated high school. It was one of the most miserable times of my life. I was in pain and at that stage a medical mystery, I had undiagnosed hypermobility (which turned out to [...]
SHOUT A LITTLE LOUDER: Ehlers-Danlos Awareness Month (May)
If you have Ehlers-Danlos Syndrome one of the very first things you would have done is learn how to pronounce and spell it. And it’s not something you are going to forget anytime soon: just about [...]
Revealing your diagnosis
Working out who, what, why and when to share your hypermobility diagnosis can be very confusing, and the cause of a lot of anxiety for some people. So let’s run through the whos, whats [...]