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    • HSD, JHS, hEDS… oh my!
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  • Home
    • About
    • Blogging Team
    • Community Guidelines
  • About Hypermobility
    • The Spectrum of Hypermobility
    • Hypermobile Ehlers-Danlos Syndrome
    • HSD, JHS, hEDS… oh my!
    • Links
  • For Health Professionals
    • Join Our List
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All of our Blogs!

Tag Archives for: "The Ehlers-Danlos Syndromes"
The Ehlers-Danlos Syndromes
Christmas Day: It is forever full of surprises
By Michelle O'Sullivan
In Adapting, Adults, Mindfulness
Posted December 7, 2019

Christmas Day: It is forever full of surprises

Christmas Day is forever full of surprises. When you’re little, it’s the right kind of surprises – “What has Santa brought?” “What presents will I get from family?” “How much fun are we going to [...]

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Building each other up: Why we need community
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Community, Emotional Impacts
Posted June 6, 2018

Building each other up: Why we need community

Over the years I have been involved in a wide range of communities, from school to university, Guiding/Scouting Movements, church, and sports (ha, that was a while ago!). And while they all [...]

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The Burger Joint
By Michelle O'Sullivan (Occ. Therapist)
In Adults, Ehlers-Danlos Syndrome, Hypermobility Information, Hypermobility Spectrum Disorders, Joint Hypermobility Syndrome, Loeys-Dietz Syndrome, Marfan Syndrome
Posted May 7, 2018

The Burger Joint

Ever been to a burger joint? Ever hear of joint hypermobility? What on earth do the two have in common? Joint hypermobility is the presence of a larger than expected range of movement at a given [...]

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Hypermobility: The condition that takes away…
By Michelle O'Sullivan (Occ. Therapist)
In Adapting, Chronic Illness, Disability, Emotional Impacts, Grief, Identity, Independence, Mental Health, Pacing
Posted April 5, 2018

Hypermobility: The condition that takes away…

Hypermobility is a stealer. It steals so much from those who live with it, making it feel like the label should more appropriately be “Hypermobility: The condition that takes away more than [...]

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4 keys to hypermobility pain management
By Michelle O'Sullivan (Occ. Therapist)
In Adapting, Adults, Disability, Emotional Impacts, Mindfulness, Pacing, Pain Management, Psychology & Counselling, Therapy Options
Posted March 29, 2018

4 keys to hypermobility pain management

I’m sorry to hear that you, or your child, are experiencing so much pain. Pain is a big problem for a lot of people with hypermobility conditions, so please know that you are not alone in this [...]

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Are your clothes out to get you?
By Megan Taylor
In Adapting, ADL, Adults, Disability, Dressing, Management Skills, Self-Care
Posted March 22, 2018

Are your clothes out to get you?

First of all – you’re valid, and you’re awesome. No matter how you dress or whether you even care about fashion or not. But sometimes part of our self-care might be allowing [...]

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The reality of a flare-up: Living with EDS & Dysautonomia
By Erica Ortiz
In Adapting, Chronic Illness, Pain Management
Posted March 15, 2018

The reality of a flare-up: Living with EDS & Dysautonomia

Recently I had a terrible flare up, and someone asked me “what exactly does that feel like? How was a flare-up different from the usual pain of my Ehlers-Danlos Syndrome & [...]

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8 Tips for planning a solo day out, like a boss!
By Megan Taylor
In Adults, Management Skills, Pacing, Pain Management
Posted March 8, 2018

8 Tips for planning a solo day out, like a boss!

I went to my very first pride march this weekend! It took some epic planning, but I learned a lot from this and wanted to share with you my 8 tips for planning a solo day out, like a boss! [...]

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Finally getting a diagnosis
By Liz Harvie
In Adults, Anxiety, Chronic Illness, Emotional Impacts, Grief, Identity, Pacing, Psychology & Counselling, Thought Management
Posted March 1, 2018

Finally getting a diagnosis

Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis.   I’m 44 and live in the UK. I [...]

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Dear Ehlers-Danlos Syndrome
By Liz Harvie
In Adapting, Adults, Chronic Illness, Community
Posted February 28, 2018

Dear Ehlers-Danlos Syndrome

Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives. You took up my time, my energy, and hid from all my doctors. You made them [...]

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PO BOX 272
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AUSTRALIA
© 2018 Hypermobility Connect // Michelle O'Sullivan
 

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