Employees

I’m a 21-year-old fashion design student with hEDS living in Melbourne, Australia. My journey to diagnosis has been a recent one, and I’m still learning about myself and my disability [...]

I’m Liz. I’m a 44-year-old Mum to two daughters, my gorgeous Flatcoated Retriever and wife to a frequently travelling husband. I’m British and live in Surrey, England. I was diagnosed with [...]

I’m Lucy & I was diagnosed with Marfan Syndrome as a teenager. I’m an occasional blogger who often discusses life with chronic illness/health conditions. I also like coloured eyeliner [...]

Sam is a nutritionist, freelance health writer, wellness speaker and foodie. Her health journey began with cancer, and she now lives with EDS. She dislikes writing bios in the third person, but [...]

Some could say that my world is surround by hypermobility conditions, and at 34, I totally agree. Firstly, I am a mother of two gorgeous daughters who have both joint hypermobility syndrome. I [...]

Hello! I am so looking forward to sharing my experiences with you all and learning more about yours. This is going to be a great space filled with support and love for all of us. I’m 21 years old [...]

My name is Jessica, I’m 18 and from Sydney. I have hypermobile EDS amongst other things and enjoy dying my hair different colours of the rainbow, photography, graphic design, writing and reading, [...]

I’m Mya, I’m 18 and from the Gold Coast, Australia. I’m living with Hypermobile Ehlers-Danlos Syndrome and rely fully on the use of a wheelchair. I’ve been struggling with my Ehlers-Danlos for my [...]

My name is Jennifer Manly. I’m 28 years old and was diagnosed with EDS in 2015. I do freelance marketing and writing and I have a precious dog named Seven. I love reading, writing, podcasts, [...]

My Name is Sam Payne. I’m 18 and live in Newcastle NSW. I’ve been diagnosed for a few years now but like usual I had misdiagnosed issues all my life and had my first surgery at 8 months old. I’m [...]