I’m Liz. I’m a 44-year-old Mum to two daughters, my gorgeous Flatcoated Retriever and wife to a frequently travelling husband. I’m British and live in Surrey, England. I was diagnosed with Hypermobile Ehlers-Danlos Syndrome in November 2017 after seeing various ‘confused’ practitioners and being given a couple of misdiagnoses.
I also suffer from Dysautonomia. Getting my diagnosis brought with it an array of feelings and emotions but explained many ‘symptoms’ that I had been experiencing my whole life. I’m in a good, positive place right now and am happy to be here to share my experiences with you.
Finally getting a diagnosis
Relief. Reassurance. Validation. Shock. Denial. Anger. Grief. Acceptance. Peace. Self-respect. These emotions all stem from finally getting a diagnosis. I’m ...
Dear Ehlers-Danlos Syndrome
Dear Ehlers-Danlos Syndrome, I thought you had me. I really did. You gradually crept uninvited into my life, OUR lives ...