Marfan Syndrome: It can be a pain in the behind
February is Marfan Syndrome Awareness month. Our resident Marfan Syndrome blogger, Lucy, has this extremely important message to share: Marfan ...
Because it could change a life: Marfan Syndrome
Marfan Syndrome awareness month is upon us again! If you’ve followed my blogs in the past, you’re probably thinking "here ...
Distract from the pain
Pain management is a personal experience. With chronic pain finding the right way to manage the pain takes time and ...
Who’s got your back?
Who's got your back? International Scoliosis Awareness Day was on June 30 with the theme #gotyourback18. I feel passionate about ...
A positive pain management experience
Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had ...
My First CBT Session
BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I ...
The daily realities of Marfan Syndrome
At the beginning of February, I made a vow to write at least one blog post a week in aid ...
Finding my voice through Marfan Syndrome
My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one ...
Learning you have Marfan Syndrome
When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death ...
What is Marfan Syndrome?
Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the ...
