Marfan Syndrome: It can be a pain in the behind
February is Marfan Syndrome Awareness month. Our resident Marfan Syndrome blogger, Lucy, has this extremely important message to share: Marfan ...
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Because it could change a life: Marfan Syndrome
Marfan Syndrome awareness month is upon us again! If you’ve followed my blogs in the past, you’re probably thinking "here ...
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Distract from the pain
Pain management is a personal experience. With chronic pain finding the right way to manage the pain takes time and ...
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Who’s got your back?
Who's got your back? International Scoliosis Awareness Day was on June 30 with the theme #gotyourback18. I feel passionate about ...
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A positive pain management experience
Earlier this year I was referred to the Pain Management Clinic at my local hospital, and last month I had ...
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My First CBT Session
BEFORE: Tomorrow morning I will be attending my first CBT session which will be a new experience for me. I ...
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The daily realities of Marfan Syndrome
At the beginning of February, I made a vow to write at least one blog post a week in aid ...
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Finding my voice through Marfan Syndrome
My life with Marfan Syndrome has been incredibly challenging, to say the least. But do you know has been one ...
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Learning you have Marfan Syndrome
When I first received my Marfan Syndrome diagnosis many years ago, I felt like I had been given a death ...
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What is Marfan Syndrome?
Here at Hypermobility Connect, we like to get behind the awareness days/months that are in place for some of the ...
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