Users

I’m Mya, and I'm from the Gold Coast, Australia. I’m living with Hypermobile Ehlers-Danlos Syndrome and rely fully on the use of a wheelchair. I’ve been struggling with my Ehlers-Danlos for my whole life but was only diagnosed in 2014 after several years of misdiagnoses. I am TPN & Gastric...

Sharon Hennessey is a physiotherapist with 23 years of experience and is the owner of Not Just Bendy Hypermobility Services in Brisbane.  Face-to-face and telehealth consultations are available at NJB with Sharon, Chen and other members of the hypermobility team.

I’m Liz. I’m a 44-year-old Mum to two daughters, my gorgeous Flatcoated Retriever and wife to a frequently travelling husband. I’m British and live in Surrey, England. I was diagnosed with Hypermobile Ehlers-Danlos Syndrome in November 2017 after seeing various ‘confused’ practitioners and being given a couple of misdiagnoses. I...

Sam is a nutritionist, freelance health writer, wellness speaker and foodie. Her health journey began with cancer, and she now lives with EDS. She dislikes writing bios in the third person, but her job requires it. Her new site, Everyday Thriver, aims to empower people with chronic conditions to live...