Users

I’m a 21-year-old fashion design student with hEDS living in Melbourne, Australia. My journey to diagnosis has been a recent one, and I’m still learning about myself and my disability and how to approach life. Batman is my favourite superhero! My passions in life are creative and include my love...

I am 37 years old, and live in South Africa. English is my second language. At the age of 26 I realised that everything that is "wrong" with me, is more connected than the doctors thought and searched until I found answers. Earlier this year I had the first official...

Hi! I am Renee, at 31 years young I am extroverted, inquisitive, adventurous and passionate by nature. I was diagnosed at 8 into the connective tissue dysplasia family and have had plenty of ups and downs along the way. Graduating with a degree in medical radiation science, I am a...

I’m Michelle, and I am a New Zealand born & raised, Aussie. I have joint hypermobility & orthostatic intolerance amongst other conditions such as Crohn’s & chronic fatigue. Prior to becoming significantly unwell, I was a young, active woman on a ‘career & study’ path. My health changed that and...