Users

I’m Mya, and I'm from the Gold Coast, Australia. I’m living with Hypermobile Ehlers-Danlos Syndrome and rely fully on the use of a wheelchair. I’ve been struggling with my Ehlers-Danlos for my whole life but was only diagnosed in 2014 after several years of misdiagnoses. I am TPN & Gastric...

Sam is a nutritionist, freelance health writer, wellness speaker and foodie. Her health journey began with cancer, and she now lives with EDS. She dislikes writing bios in the third person, but her job requires it. Her new site, Everyday Thriver, aims to empower people with chronic conditions to live...

I’m Lucy & I was diagnosed with Marfan Syndrome as a teenager. I’m an occasional blogger who often discusses life with chronic illness/health conditions. Coloured eyeliner, tattoos, and piercings are my thing. Green tea loving book worm! You can read more over on my blog https://1stimeblogger1232.blogspot.com/. Lots of love everyone!

I’m Liz. I’m a 44-year-old Mum to two daughters, my gorgeous Flatcoated Retriever and wife to a frequently travelling husband. I’m British and live in Surrey, England. I was diagnosed with Hypermobile Ehlers-Danlos Syndrome in November 2017 after seeing various ‘confused’ practitioners and being given a couple of misdiagnoses. I...

I’m a 21-year-old fashion design student with hEDS living in Melbourne, Australia. My journey to diagnosis has been a recent one, and I’m still learning about myself and my disability and how to approach life. Batman is my favourite superhero! My passions in life are creative and include my love...

Michelle is a Senior Occupational Therapist working solely with adults with hypermobility and related conditions. Michelle is the owner of Hypermobility Connect, an online platform for people with hypermobility to connect with resources, health professionals & each other. Michelle practices OT in her private practice and provides education to health...